Sadi’s Grandmother thinks the devil got into him. She says it with a sigh and a sadness which demonstrates her deep love for the boy. She does not blame him, or make him suffer in any way for this. But this is what she and most of the community at large believes. The devil got into him.
Personally, I find Sadi a delight. He brings light and joy
into even my most stressful days. We laugh together, play together and despite
his dramatic language delay, we chat together in a mixture of English, Lusoga
and pre-verbal babble. Sure, sometimes he bites me, stabs me with a pencil or
throws a shoe at my face, but that’s just par for course.
| Mukwanos: Me, Sadi and Norman |
Sadi has severe communication, social and behavioural
difficulties. In the UK he would most probably be diagnosed with an autistic spectrum
disorder, but since that is almost impossible in Uganda, he is just Sadi.
| Sadi "helps" Teacher Christine during shape sorting |
Sadi was born to a single mother, who unable to cope with his constant screaming, crying and head banging entrusted his care to the grandmother at the age of 2. Sadi lives with around 18 other children, most of whom are orphans, who share his care since he needs constant attention to ensure his own and other’s safety.
| Sadi with his baby cousin, Shakira |
| Chai: Sadi's favourite game, dolly's teaparty |
His grandmother, or Daada, dotes on him. She sleeps with him
in her bed so she can sooth his night terrors, she helps him to bathe and eat
and she rocks him in her arms when the daemon’s come to attack him and cause
him to lash out at himself or others.
| Sadi works hard on an activity sheet: 1 year ago Sadi could not sit still or hold a pencil. |
Since joining the Small Steps Foundation SEN Class at Glory
Be Nursery there has been a dramatic change in Sadi. Previously nonverbal until
the age of 5, Sadi learns new words daily and enjoys sharing his linguistic
knowledge with others. He can now count, recognise some letters, toilet
himself, brush his teeth and share toys. Most impressively of all, he can now
go a whole day without an incident of challenging behaviour.
| Sadi washes the "babies" during a "Taking care of myself" lesson |
Initially it came as a surprise, but Sadi is popular at
nursery. Every child wants to be friends with this quirky, creative, fun loving
little boy. Yes, befriending Sadi has its risks: a slap here, a gauged eye
there but as my friend and SSF volunteer, Chloe, describes it, that’s just
“love gone wrong”.
| Sadi swimming for the first time - with Chloe |
I will write a lot about Sadi in times to come as he is a
constant source of inspiration and joy to me. So now, hopefully you know a bit
about his background.
| Sadi shows off his visual timetable which helps to orientate him during the nursery day. |
No comments:
Post a Comment